Epileptic Daughter

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Anonymous writes, “Hi! I’ve been a single mom for the past 16 years with a completely absent father and no family in the area. I’m now 59, and two months before my youngest graduated from college, she had her first seizure…

At a time in my life where I should finally have my freedom, I am now a mother of an adult child with epilepsy. Due to COVID, I took an early retirement package after a 33 year career, and am her driver. Every time she seizes, her license is suspended for three months. We’ve been dealing with this for a year and a half, and she has experienced two seizures within the last two weeks, so I see no end in sight.

She does not live with me, but I ensure that she gets to and from work, goes grocery shopping, etc. We are working diligently with her neurologist to find the right medication(s) and doseage(s). I will have to find another job at some point, but right now am unable to. I’ve searched for support groups for this, but have been unable to find any. I’m hoping there are others in my situation that may be able to connect with. Thank you so much… my anxiety is high just worrying about her.”

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1 thought on “Epileptic Daughter”

  1. Hi, my son became epileptic after a car accident almost 20 years ago. He has been in and out of work and with and without licence throughout this time. It is not easy. I am 63 and still working as I am on my own. My son lives with me and life is not easy. I work but have to take a lot of leave to care for him when he has seizures. I am lucky that I have carer’s leave. My life is not what I envisaged but I am glad to still have him. You have to decide what is most important to you and work around any problems. My son had 3 seizures in one day a few weeks ago. Most people don’t understand the stress unless they experience it. You just have to be strong and keep going on. There is little support out there.

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